Charlie Gard's Parents Given 'More Time' With Terminally Ill Baby
- Author: Santos West Jul 01, 2017,
Jul 01, 2017, 0:22
A terminally ill British baby will be given "more time" before life support is withdrawn, the 10-month-old boy's parents and a London children's hospital said Friday, days after the family lost a legal battle to take him to the US for trial therapy.
The debate over Charlie's life is about balancing the moral dilemma of parental rights versus the state's duties to protect the wellbeing of children.
A spokesperson from Great Ormond Street hospital said there would be "no rush" to change Charlie's treatment.
Charlie's plight has touched many people and the family received donations totalling more than £1.3 million to take him to the U.S. for therapy.
British courts decided Charlie should be allowed to die after a heartbreaking legal battle in which doctors asserted that the child had no chance of survival, and Charlie's parents argued there was an experimental treatment in the United States they had not tried.
Doctors detected that baby Charlie had a rare inherited genetic disease known as mitochondrial DNA depletion syndrome (MDDS), which causes brain damage and muscle weakness.
Charlie's life support machine will be turned off today after his parents lost the final appeal in their fight to take him to America for treatment.
"We are utterly heartbroken spending our last precious hours with our baby boy".
Nine-month-old Charlie Gard was due to be moved to palliative care at midnight on Wednesday, the BBC reports, but the Supreme Court has ordered that he remain on life support until the court sits to make its decision on 8 June.
His parents Chris Gard and Connie Yates shared their pain and also expressed their anger against the doctors who have refused to let Charlie come home and die.
"We can't even take our own son home to die, we have been denied that, do you not think we have been put through enough?"
Charlie Gard was born on August 4, 2016.
While the European Court initially granted a three-week extension to keep the infant's life support on until July 10, that extension was revoked when the decision of the court arrived on Tuesday.
Mr Justice Francis said that withdrawing life support was in Charlie's best interests, adding that he made the decision with the "heaviest of hearts".
In a turn of events, however, doctors at Great Ormond concluded that nucleoside, which was not created to cure the disease, will not improve baby Charlie's condition.
Charlie was transported to Great Ormond Street Hospital for Children, where he has been ever since.